Meet Colton

Child's Diagnosis: Tetralogy of Fallot, double outlet right ventricle

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We found our sons CHD at his 20-week anatomy ultrasound. I was in the room for almost two hours because the tech wasn’t sure what she was looking at, so she got her boss to take over my ultrasound. I had to switch my OBGYN and hospital in order to ensure our sons safety. After he was born, he was put on oxygen for 3 hours and then was doing good. Two weeks later he had a blue spell and was rushed to the emergency room. UK tried to keep him stable, but he needed an intervention sooner than they thought. They kept him until 8am and then transferred him to Cincinnati Children's Hospital to have two stints placed in his heart. He was admitted for a week and then was sent home. Colton has been doing great they said the stints are doing what they are supposed to do. He is scheduled to have his first open heart surgery on February 9th, 2022. His birthday is July 17th, 2021. He is the happiest baby ever! He also has two chromosome abnormalities; he has 1 of 7 and 2 of 16p. He also has three deformities; he has a high roof of pallet and a single Palmer crease.

Meet A'Mijah

Child's Diagnosis: Transposition of the great arteries (TGA). Pulmonary Stenosis

Has Kerrington’s Heart impacted your journey? If so, how?:

They were a big help in the beginning of our journey.

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A’Mijah was born in Madison County. I stayed super sick and in a lot of pain when pregnant with her. When she was born, and her cord was cut she immediately turned blue. There was an intern in the room during delivery via C-section who stated she had a heart defect. She was rushed to UK and once I came out of recovery, they rushed me to UK to be with her. She had her 1st open heart surgery at 6 days old to do the arterial switch to fix her heart. The night of her 8th day of life, A’Mijah had a blood clot form and caused tachycardia. They then had to re-open her and remove the blood clot that had made its way to her lung. When she returned to the room, they left her chest open (in case of any other emergencies.) I was told to kiss her goodbye. (They didn’t expect her to make it thru the night) Once she came back up to her own room, she was then on ECMO (blood transfusion) They closed her back up on the 11th day. She then had to have 2 more open heart surgeries since then. One at the age of 1 and one at the age of 4. She has been very stable since the last operation and now we are doing cath procedures yearly if needed to help with the pulmonary stenosis. She is my tough firecracker!!!