Other Resources

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First Steps
Early intervention program serving children from birth to age three years old who have a developmental delay or a physical or mental condition that may cause a delay in development. Services include, but not limited to, evaluation of the child’s development, home visits, and an individual family services plan (IFSP).

For more information contact the First Steps Program at (800) 442-0087 or visit www.chfs.ky.gov/dph/firststeps.htm .


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Icing Smiles
Provides custom celebration cakes and other treats to families impacted by the critical illness of a child.

For more information visit www.icingsmiles.org


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The Center for Courageous Kids (CCK)
A world-class medical camp, in Scottsville Kentucky, at no cost to families designed specifically for children living with medical challenges. CCK encompasses an on-site medical center with helipad, indoor aquatic complex, equestrian riding area, bowling alley, gymnasium, climbing wall, boating, fishing, theater, four camper lodges and so much more. Offering weekend retreats for ill children and families and summer camping sessions designed especially for courageous kids.

For more information visit www.thecenterforcourageouskids.org


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Heartpedia - Mobile App

Congenital heart defects can be difficult to visualize and explain.  The Heartpedia mobile app provides a variety of anatomically-correct, three-dimensional interactive heart models that show the defect and their associated repairs.  This app may also be helpful to patients and families who want to learn more on their own or to share the details of a defect with concerned friends and family.

https://www.cincinnatichildrens.org/patients/child/encyclopedia/heartpedia


 
 
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The National Child Traumatic Stress Network (NCTSN) was created by Congress in 2000 as part of the Children’s Health Act to raise the standard of care and increase access to services for children and families who experience or witness traumatic events. This unique network of frontline providers, family members, researchers, and national partners is committed to changing the course of children’s lives by improving their care.

https://www.nctsn.org/resources/all-nctsn-resources?search=&resource_type=All&trauma_type=8&language=26&audience=29&other=All